I do have the velvet skin.... and scars and I dislocate my shoulders like 20 times every night where I actually wake up. I could go on about it.... but meh But im not weak yet I can leg press more than 400lbs, the doctors thought I did power lift sessions when they saw my legs. But I tend to bleed inside my joints If i stress them too hard and well... yeah that hurts for several weeks. But I rarely say anything or explain it to anyone. I will continue conversations while putting things back in place without them ever noticing how much pain im in. It has become more like a state my body is in, like being hungry, rather than an alarm function.
forgot to mention one thing, sometimes when i use my toes, they make a "crack" sound, its funny to creep out grandparents, but my right toe now hurts all the time so i guess it wasnt such a good idea to abuse that ability.
Cartilage bubbles anyone? That's what cracks in your joints BTW and it can cause Arthritis like symptoms due to the fact you are wearing down the cartilage faster than usual in the areas you cracked I think, I don't know, I just know its supposed to be really sore all the time when you get older and the cartilage is already worn out so it doesn't help at all.
If it's normal for you, then you become more able to deal with it (i'm stating the obvious here). Although quite a lot of people aren't really sensitive to the condition of others, more still ignore it as pointing out all the time would surely become annoying and useless...right? I see people sometimes exhibiting behaviour that looks a lot like competing over the "who's the most damaged" trophy, which I find kinda funny as it shows just how competitive people are with each other (even when they don't really realise that's what they're doing). Not so much in this thread though, which is a little surprising. /offtopic in the offtopic forum...heh
Well I have always thought something was wrong with me since I was about 12, when I suddenly became covered in stretch marks. But no one ever believed in my injuries even if I was in blinding pain I never cried/bleed or had any instant bruising and doctors would just tell me i didnt have reduced mobility "Its not even sprained!". So I simply stopped complaining all together as it never did any fucking good. That has become a habit now so I never talk about it in dept to anyone. I didnt have any idea what it was, until about 8 months ago when I found out myself and had to fucking research it myself AND decide what to do about it because my doctor didnt give a fuck, he just forgot me for a week and then clearly googled it and told me over the phone to find out myself, then left for vacation. I dont have the energy to have a job while studying, so I dont have the money or energy to party(drink enough to be popular). And I picked a highschool without mandatory PE class and got seperated from my old friends. So I dont really talk to anyone anymore at all. So im very depressed. Its kind of like knowing you are going to be hit by a car later. So no one understands anyway and talking to other who has it aswell is not exactly and uplifting experience but just a glimpse at what awaits me. so yeah I forgot what my point was in all this.
I did, but I hate all doctors now. I used to respect them, but have come to realise that they are also just people. They dont give a fuck. They are skilled at giving the most LIKELY diagnosis to a symptom. I have had to explain it to like 10 different doctors while being on a waiting list, because my retard doctor wrote me up for a ton of tests i didnt need and they really dont care or communicate with each other. The ribbon thingy for this even has a build in doctors are asshats joke in it. Its zebra striped, "when you hear hoofs you think horse, but there are other possibilities". The real geneticists are somewhat acceptable. But the facebook group has a HUGE collection of downright retarded doctor quotes both funny and sad to me at the same time. Many of them travel out of country and state to get to a "real" doctor.
That's always the problem - if it's a rare condition, it sometimes takes years to be diagnosed, and then nobody knows anything about it except the specialist. S'why in the end, you gotta know yourself better than anyone. Dunno why i'm still posting here.
-120+ IQ at age 10 -better than 20/20 vision -Average weight and muscle mass -A little on the short side -Minor audio discrimination problems -Some anti-social behaviors -ADD or possibly some form of autism (Everyone has different opinions) -Depression (But I beat that with a hammer!)(maybe) I guess I'm just abnormally normal... go me?
I know self diagnosis is for muppets but I think I have ADD. when i'm in the loading screen for a game, even if it's loading really fast, i have to turn on the TV. I randomly select blocks of text while I read stuff on the internet. I fall asleep at the theatre frequently... once during the baghdad themed middle section of a war play about a week ago, about 2 years ago i fell asleep during the percussion musical called Stomp. also i'm a muppet.
